Cooper was diagnosed with severe hemophilia B, a rare disorder causing excessive bleeding due to factor IX deficiency. Only about 7,000 out of 30,000 Americans with hemophilia have hemophilia B, primarily affecting males.
Prioritizing Normalcy
The Abereggs prioritized giving Cooper a normal life, seeking support through local groups and the Coalition for Hemophilia B.
Diverse Treatment Approaches
Both Cooper and his sister Brooke have mild hemophilia B, requiring different treatment methods - prophylactic for Cooper and on-demand for Brooke.
Community Support
Despite challenges, the family found solace and assistance through the Coalition, enabling the children to participate in specialized camps and fostering a strong sense of community.
In a world where rare disorders can be isolating, the Aberegg family's journey showcases the power of community and support in overcoming the obstacles posed by hemophilia B. Through their unwavering determination, they have found a network of individuals who understand their struggles and provide both emotional and practical assistance. By sharing their story, they hope to inspire others facing similar challenges to seek out the support they need to thrive. The tale of the Abereggs serves as a beacon of hope and resilience for all those impacted by hemophilia B, proving that with the right support system, anything is possible.