Minneapolis Landmarks Illuminate Green for International Myotonic Dystrophy Awareness Day

Leo and Lauren Zabezhinsky experienced the excitement of welcoming their newborn daughter, Jackie. However, their joy soon turned into concern as Jackie faced challenges with movement and swallowing.
A Journey of Uncertainty
After spending two months in the NICU and undergoing tests and treatments for almost a year, Jackie was diagnosed with myotonic dystrophy, a rare genetic muscle disease. The Zabezhinskys were filled with questions about Jackie's future, wondering if she would walk, go to school, or if her condition would worsen over time.
Raising Awareness
Inspired by their own journey, the Zabezhinskys decided to shed light on myotonic dystrophy by organizing a citywide initiative. On September 15, various prominent buildings and structures in downtown Minneapolis, including Target, Target Field, and IDS Center, will illuminate green in honor of International Myotonic Dystrophy Awareness Day.
Advocating for Research and Support
The efforts to raise awareness and support research on myotonic dystrophy extend beyond Minneapolis. Senator Amy Klobuchar has been leading efforts to secure federal funding for DM research. In a bipartisan effort, Klobuchar urged colleagues to allocate $10 million in the upcoming appropriations bill for DM research. With Minnesota being a hub for groundbreaking research, Klobuchar is hopeful that federal funds can aid in finding a cure for DM.
A Beacon of Hope
Jackie's middle name, Orli, meaning 'my light' in Hebrew, symbolizes the Zabezhinsky's hope for a brighter future for their daughter and others battling myotonic dystrophy. The Zabezhinskys believe in the potential for medical advancements to bring about a cure within Jackie's lifetime. Through their advocacy and awareness efforts, they aim to ensure that families facing similar challenges do not feel alone in their journey.